Medically complex kids
- xrays about once a year
- injections
- not enough doctor stickers - would like them in different colors
- not enough medicines in different colors, mix of pills and liquid meds
- Orthopedics with either crutches or wheelchair
- eye doctor
- lung doctor
- pediatriction
- gastroenterologist
- neurologist
- neuropsych
Also hygiene - include bathe under arms, booties, so they don’t have just elbows and knees cleaned.
- Medical journal/health log to track when they’re feeling stressed/good night’s sleep (epsy app as a partner?)
- Personal time
- Naps
- healthy bedtime
For things like sleep apnea:
- Clean supplies (weekly)
- Replace filter (monthly)
- Order new supplies (every 6 or 12 months)
When my daughter needed an NG-tube for a few months:
- Clean machine parts
- Check feed supplies
- Order more feed
- Order more bags
- Order more syringes
- Feed via NG-tube (could be multiple times a time depending on child need and tolerance)